Crowns for Cancer

Another fundraiser has been set up for the McCullar family, "Crowns for Cancer", will be a pageant held at the

Warren Culture Center on Saturday, March 5 · 2:00pm - 5:00pm. 
Click Here for the Facebook Link.
If you have any questions feel free to contact Halley Calhoun 870-918-3644 or Shelby Ferrell 870-918-6346.
Thanks!

Ty Update 1/30/11

1-30-11 Good Morning to all Ty Fans, Prayer Warriors, and Family. Ethan was the night nurse AGAIN last night and has gone to bed to catch up. Lauren has gone to Church this morning with Ethan's sister Cis joining her. Nanna (Ethan's Mom) has baby duty until Lauren get's home to take over and care for our Littleman.! ...Ty had a quiet night with all still remaining somewhat stable. Nanna sent me this picture of Ty playing with his favorite toy and watching Fraggle Rock in his very own recliner! Has to be a guy thing! Be blessed today. Our love~ The McCullars and Debra aka Honey

 

Ty Update 1/29/11

An evening update on Ty: 1-19-11 9:10 PM Lauren called this morning and said Ty seemed to be relatively happy today.. She did notice his heart rate increasing the longer he was up, but felt like it was probably due to his White Blood Count being alittle low. With his CCHS, they are not sure just yet what his signs a...re. So, when he gets tired, she puts him in his bed and he's a happy boy and his heart rate decreases! Ethan had the night shift, so he slept most of the day. Lauren had a good day just chilling with her littleman and playing with him throughout the day. They played with plastic cups and he seemed to think it was pretty funny when she put the on his head! We'll pray for another good day tomorrow. And a Nurse!! I know of one in Chicago we could call ;-)!! Honey

Ty Update 1/29/11

Update on our sweet Littleman: He had a great day today! Lauren and Ethan did not know what to expect, as the doctors told them this would be Ty's worst day (7th day after Chemo.) Ethan stayed home with him today while Lauren went to work. Ethan said he and Ty had lots of cuddle time as well as Ethans Mom. He loves ...to be rocked and held, but after awhile....he just wants to be put in his bed and left alone! Ethan said he only slept for about 45 minutes today, so they are in hopes he sleeps all night! They do not have a night nurse tonight, so that makes for a longggggg night for one of them. They take turns when they don't have a night nurse. Bless each of you and Thank you! Debra aka Honey

Ty Update 1/28/11

Update as or 1-28-11 9:17 Lauren text me early this morning with the precious picture below. Ty's always seems to have a sweet little smile and his feet propped up!

Ty Update 1/27/11

Ty is resting at his home tonight,  the doctors say these next couple of days will probably be rough on him,  thank you for all the prayers and please keep them coming!

Ty Update 1/26/11

Ty should be coming back to Arkansas to finish his treatments today sometime. Angel One is scheduled to leave Little Rock at 7:30 AM. God willing, Ty should only have to spend one night at the hospital before going home and then we will wait for his counts to normalize before beginning round 2 of chemo! Thank you everyone for your continued prayers!

Ty had a rough day with the nurses changing his bandages and all the docs checking him to confirm hes ready to fly home.

More pictures from Chicago

Ty Update 1/24/11

As of 1-24-11-10:30: Ty has finished his 3 rounds of Chemotherapy. What a little trouper! He did great with no side effects. Surgeons made rounds this AM & want to start him back on his feeds today. If all goes well with that, hopefully they will be back at home maybe Wednesday or Thursday. Ty's Nanna is on her way back to LR, please pray for safe travels. Until next update...Much love~ The McCullars and Debra

 

Ty Update 1/23/11

Update as of 1-23-11 10:42 Ty is tolerating his Chemotherapy well. He will have his 3rd one today. I believe L&E are hoping to go back to AR tomorrow providing everything can be arranged with Angel One and the Doctors here in Chicago give them the green light! They are ready to be home...We hope all is well with you ...and yours. Much love ~ Lauren, Ethan, Ty, and the two Grandmothers! Debra

Ty Update 1/22/11

Ty getting his second dose of chemo today. Happy and smiling as always!

 

Lots of prayers please...Ty Update 1/21/11

Ty's MIBG Results came back showing Neuroblastoma has metastasized in his arms and legs. This means Stage 4 and High Risk. Since the prior results to MIBG Scan were favorable, the Doctors in Chicago want to initially treat Ty as Intermediate Risk to see if his cancer responds. Please continue to pray. Our love~ Ethan, Lauren, Barbara & Debra

Lauren finally got to hold Ty today for the first time since his surgery.

Good News!!

It's great wonderful awesome news for Ty's biology results!! The M- NYC is NOT I repeat NOT amplified!!!!! this makes Ty's neuroblastoma intermediate risk NOT high risk!! He will start his first 3 days of chemo tomorrow!! Will send more details later!! Thank God and keep those miracle prayers coming!!!

Sleepy Little Man...

Fundraiser for Ty and Family

Ty Update 1/19/11

Ty had a great day! Drs say the bone scan results are GOOD & Ty has a MIBG scan tomorrow (to look for any hidden neuroblastomas) & CT scan so we'll have a ref. point once he begins chemo to see how much the tumor responds. We're hoping to have all the results & to begin chemo on Friday. We'll continue to update. We love you all & continue to NEED & APPRECIATE your prayers so so very much! Love~ Ethan, Lauren, & Ty

 

Ty getting his bone scan...of which the results are good! Praise the Lord!!

Ummm....excuse me nurse...When may I have some sprite and water slightly chilled, no ice in my sippy cup?????? Honey

Ty update 1-18-11

Ty has big smiles for his Mommy and Daddy today reassuring them everything is going to be fine! He say's.....I'm a McCullar! My Dad used to ride bulls...this ain't nothing.....

Scan has been moved to 2 pm. Please continue to pray for my sweet grandson, his mommy,daddy and the entire family. Our love~ Debra aka Honey

 Ty had a good night last and is very happy this morning. Had many smiles...hanging with his Daddy. He's going for his bone scan at 9:00. Please pray for clear results. Our love. Lauren & Ethan

 

I'm a fighter.......GRRRRRRRRRR!!!

Ty Update 1/16/11

‎1-16-11 12Noon Spoke with Barbara (Ty's Nanna) this morning. Med team visited Littleman & reported all is going well. Plans to remove arterial line after speaking with Ethan first. Ty had a little fever last night, but rested well. Windows Live Messenger with L&E last night and Ty! So good to see & talk with them all though many miles away. Thank you for your love & prayers. Will post more....Debra

Ty Update 1/15/11

Ty had a good day today, he kept his eyes open long enough to watch some of his favorite movies & we got some smiles. : ) No new news from the docs, we should know something next week. We thank all of you for your thoughts & prayers. Please continue to pray for healing for our sweet angel. This page brings so much comfort to us knowing all of you are praying for Ty. We love you all. ~Ethan, Lauren, and Ty

 

Just Pictures....Ty before leaving for Chicago

Ty Update 1/14/11

Ty got good news today! The preliminary path report looks like it will be the more favorable kind of neuroblastoma and so far they have not seen any neuroblastoma cells in his bone marrow. We are still waiting on more definitive testing with final reports to come next week but so far so good! Praise God and thank you all for your prayers!! Love, Ethan, Lauren , and Ty

Its 2:28 AM, Ethan and Barbara are resting well at the hotel and I am with little man and will go to sleep shortly! Everything is going great and Ty is sleeping away! He is already back to crossing his little legs as he sleeps! Thank you everyone for your huge outpouring of prayers and support for our little family. We... can really feel your prayers in action and ask that you keep them coming! We love you all! ~Lauren

Pics post surgery 

 

Surgery Update 1/13/11

As of 12:30, Ty is out of surgery safely and on his way back to the Pediatric intensive care unit. They had to remove quite a bit of scar tissue and they ended up taking out his appendix because once they removed the scar tissue the appendix didn't look great and they didn't want him to get appendicities. Other than that all is well and I will keep updating as I get them. 

As of 11:15, Lauren just called...surgeons are closing now. Everything is still going well. Once the surgeons close, and make sure his ostomy is working well, then hem/onc doctor will go in and get the bone marrow aspirate. Then he will be on his way back to the picu. Thank you for your prayers. Debra

       as of 10:25, everything is going well. Just sent down the first piece of bowel to the pathologist and they are waiting on the results to see where to place his ileostomy. It could take several samples to get the right level. Thank you. Debra 

    as of 9:06, surgeons just called L & E, Ty went to sleep with no problems, and they are starting now. Surgery should take approximately 4 hours. Ethan's Mom, Barbara, just landed in Chicago. Thank each & every one of you for your prayers and love. I will update when Ty is out of surgery. Debra

 

Ty's in Chicago! 1-12-11

 8:30 pm 1-12-11 Quick update from L&E. Ty's surgery in the morning will include Ilieostomy, more thorough biopsy and bone marrow aspirate. Our continued prayers will lift them up and pray for a successful surgery & clear results. Thanks be to God...

 

Resting in Chicago before Surgery in the morning

 

The trip went well. They are checked in! Ty did well and was resting while they grabbed a quick bite. MIBG Scan may be done some time this afternoon/evening. This scan will reveal any tumors that may be hiding. Scheduled @ 8AM tomorrow for his Colon Surgery.This will be a lengthy surgery. Please pray not only for "Our... Littleman", Ethan, and Lauren but for the Surgeon Team. Thanks to everyone for your love~ Debra

 On Angel 1 about to take off for Chicago

Update on Ty - 1/12/11

From Lauren - 
We are in Chicago, in the ambulance on the way to the hospital! Thank you everyone for your continued prayers, love, and, support! All our love, Ethan, Lauren, and Angel man Ty

Ty, Ethan, and Lauren are on their way to Chicago as I type, please pray for safe travels.

Update on Ty - 1-11-2011 10:08PM

I just spoke with Ty's nurse. Ty had a good day! He is resting peacefully now and will be "Jet Setting" tomorrow at 8am for Chicago. The flight is 3 hrs. Then an hour ride by ambulance from the airport to the hospital. So, if all goes on schedule, the McCullar Family should be checked in safe and sound around the Noon hour. Until tomorrow~ Bless each and everyone of you. Debra - aka - Honey!

Update on Ty - 1/11/2011

As of 2:00 Tuesday afternoon, L & E got word from CMH that Ty is scheduled to be med -flighted at 8:00 am Wednesday morning to Chicago. Lauren & Ethan will be flying with him.
I spoke with nurses this morning, Ty is happy and charming all the nurses with his smiles and gorgeous blue eyes.
Thank you for your prayers and ...love. We will keep you updated. Ty's Honey

Update on Ty

Ethan and Lauren recieved news today that no parent should ever have to hear, Ty has Stage 3 Neuroblastoma, possibly Stage 4. Little Rock had 6 inches of snow last night creating dangerous traveling conditions for most of the City. As of now, ACH plans to Fly Ty to Chicago on Wednesday. Please pray more then ever for Ty, Ethan, and Lauren.

Ty's Story

Ty was born on 09.02.09, weighing 7 lbs. 12 oz. and was 21 1/2 inches long. He was an instant blessing to our life and was so beautiful and perfect. On day one of life, Ty had what the doctors call an Apparent Life Threatening Event. He was lying on his back on the bed in the room with Lauren and the nurse when he began to cough up mucus and turned blue. The nurse was unable to get him to begin breathing so she pushed the emergency button and he was rushed to the NICU at Baptist Hospital. They were able to stablize him at Baptist but later that evening he was transferred to Arkansas Children's Hospital. Several days passed and Ty had failed multiple attempts to be taken off of the ventilator. The doctors thought that he may have had a small jaw and that it might be pushing his tongue into his airway making it difficult for him to breathe. They then decided to take him to the operating room and perform what they call a mandibluar distraction which is basically fancy talk for moving his jaw bone forward. The doctors surgically broke his jaw and placed plates and screws so that they could move his jaw forward 15mm over the course of about 10-15 days.

During all of this Ty was still on the ventilator and was also having trouble passing stool without assistance from enemas, etc. The doctors did several tests and found that he had a disease called Hirschsprungs, which is a congenital disorder of the colon where there is an absence of ganglion cells which causes chronic constipation. Ty was diagnosed with Hirschsprungs on 10.01.09 and underwent surgery to place a colostomy that same day.

Once Ty had recovered from the bowel surgery and from having his jaw moved forward 15mm, they continued to try and take him off of the ventilator and always had problems. They eventually did a bloodtest that was sent to Chicago, IL to test to see if Ty had Congenital Central Hypoventilation Syndrome (CCHS). The test came back a few days later positive for CCHS and Ty's specific mutation is 20/33. More information about CCHS can be found at www.cchsnetwork.org.

Ty was taken back to the operating room on 11.02.09 for a tracheostomy, GT placement (feeding tube), and removal of the plates in his jaw (they were left in to help his jaw to harden). Ty was transferred out of the NICU and transferred to the ITU in the middle of November. He traveled to see Dr. Weese-Mayer in Chicago in January of 2010 and was discharged to come home for the first time on February 5, 2010. He has had to go back to the hospital several times since then for various reasons a couple times requiring surgery, and the longest time he has ever been at home was for almost 2 months.

Most recently on January 1, 2011, Ty had a seizure while he was in Texas and was medflighted back to Arkansas. He ended up having a MRI of his head and abdomen on 01.04.10. The MRI of his head was normal but the MRI of his abdomen showed a large tumor that is on top of his liver, pushing up one of his kidneys, goes around his aorta and inferior vena cava, and wraps around his spine. They took a biopsy of the tumor and we are still awaiting those results to see what the next step will be. Please pray for healing for our sweet Ty and we will keep this page updated. We love you all.

Update - The results of the biopsy came back and Ty has been diagnosed with Stage 4 High Risk Neuroblastoma, it has also metastasized in his arms and legs.  He has gone through 3 rounds of chemo and it awaiting more.  Thank you all for you prayers for our little man!